Resources
At KeifeRx, we are dedicated to the development of innovative disease-modifying therapies for neurodegenerative diseases like Lewy Body Dementia, Alzheimer's, and ALS. We understand that living with these conditions can be challenging, and access to reliable information and support is crucial. This page provides resources to help patients and their families navigate their journey.
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Understanding Your Condition
The following organizations provide resources specifically designed for patients and their caregivers:
Clinical Trials Information
A clinical trial is a research study in which human volunteers are assigned to different interventions to evaluate the effects of those interventions on health outcomes. These interventions can include drugs, medical devices, procedures, or lifestyle changes. Clinical trials aim to determine if new medical approaches are safe and effective. Some trials require only healthy volunteers while others include individuals likely to develop or already diagnosed with a specific health condition. Many clinical trials occur before an intervention is approved by regulators, but some occur after as a way of monitoring and confirming expected outcomes of the intervention.
At this time, KeifeRx’s therapies are in various stages of development and are not FDA approved. If you’d like to receive additional information on upcoming KeifeRx clinical trials, you can complete this form:
These resources exist to help connect volunteers to current clinical trials:
Caregiver Support
Resources are available specifically for caregivers, including information on respite care, stress management, and support networks.
National Family Caregiver Support Program
(via the federal Administration for Community Living)
Alzheimers.gov
(includes support and resources for anyone providing care to a loved one with dementia)
VA Caregiver Support Program
(for those caring for a veteran)